Friday, 19 April 2024
Friday, 19 April 2024

Storm Keating appointed as charity ambassador

CAUDA Equina Champions Charity (CECC) is pleased to announce Storm Keating as the charity’s latest appointed charity ambassador. 

The Australian fashion designer who is married to Boyzone’s beloved Ronan Keating shared the news of her diagnosis with Cauda Equina syndrome last month, following a prolapsed disc that needed urgent spinal surgery when the condition escalated into this rare syndrome.  

Did you know that you have just 24 hours to be diagnosed and treated for CES? 

Did you know that there are several red flags to look out for to help you spot symptoms within those 24 hours?

Did you know that if you go undiagnosed and untreated for more than 24 hours, your chance of paralysis is higher? 

Storm Keating commented:

“I had never heard of Cauda Equina Syndrome (CES) before my recent experience, and now it’s something I will never forget. I want to raise as much awareness as possible by supporting the Cauda Equina Champions Charity to help other people know what to look out for. Many of us take our health and our spines for granted, but sometimes the unexpected can throw you a curveball. I really want to try and raise awareness to ensure that everyone is lucky enough to come out of a CES diagnosis in a good place.”

CECC is a patient-led charity striving to raise awareness of CES and support people living with the condition. The new charity was founded in January this year. Initially by Founder and former CES patient Claire Thornber, following the devastating and permanent neurological damage following a prolapsed disc in her lower back. Claire set up a Facebook support group in 2012, which quickly gained 30 members. It developed into the Cauda Equina Syndrome Association and today has over 2,900 members from across the globe. 

Claire Thornber, Founder of CESA and the new charity, added:

“We are so pleased to now have two celebrity ambassadors on board, Duncan James and Storm Keating. Both of these high-profile people will help us raise further significant awareness for the syndrome, and hopefully, help us as a charity to make a real difference.”

Find out more about CES by visiting:


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