- Advertisement -


Sunday, 20 September 2020


Smile Train: The stigma surrounding cleft lip and palate

- Advertisement -
Babies are born with a cleft lip and/or palate in every part of the world. This includes the UK and other western countries, but you rarely see children with clefts because treatment is offered for free on the NHS and it begins soon after the child has been born.

However, in other areas of the world, where more than 200,000 new babies are born with clefts each year, many children are not as fortunate. Families in many regions often do not have access to quality healthcare services or the resources to pay for proper cleft treatment. Ultimately, leaving children with clefts at much older ages.

Globally, there is a lack of education and awareness about clefts and other craniofacial conditions which often leads to negative stigmatization surrounding those born with these conditions.

Below, we’ve outlined some of the differing stigmas associated with cleft lip and palate from around the globe:


Traditionally in China, there has been a cultural bias towards individuals with physical disabilities. This is because a large proportion of Chinese culture is deeply engrained in the teachings of Buddhism, which teaches that a handicap or deformity is an act of karma or fate.

As a result of this ethos, there has been an adverse outlook on disorders like cleft lip and palate, and children born with the condition have been forced to endure a lifetime of discrimination and social isolation. In extreme cases, children have been killed by their families due to the fear and arrogance surrounding the condition in China.

However, perceptions of the condition have drastically changed over the last decade. Government campaigns have focused on sending out educational pamphlets to households across the country, which has greatly improved the understanding and acceptance of craniofacial malformations.


In the Philippines, when a person experiences an unexpected event in their life it is typically attributed to the grace of God. Filipino’s refer to this as ‘kaloob ng Diyos’.

God’s will, or kaloob ng Diyos, is a popular explanation of disease causation in the Philippines, and so naturally it is the perceived cause of cleft lip and cleft palate.

The Filipino’s belief in ‘God’s will’ is helpful in the acceptance of cleft lip and palate, with many families suggesting that their child was ‘God-given’ after being born with the genetic condition. Due to this belief, children born with clefts, and their families, are able to cope and accept their condition.


The perceptions of cleft lip and palate across Africa is somewhat divided. For example, there is a belief among the Yoruba families of Africa that clefts are caused by supernatural forces such as evil spirits or ancestral spirits. In these communities, being inflicted by evil sources is considered a family shame and it lowers their position in that society.

Meanwhile, the Hausa/Fulani society of northern Nigeria considers cleft lip and palate to be the act of a positive spiritual or divine intervention, rather than being inflicted by negative factors. In these communities, the child born with a cleft may be left untreated for fear of ‘interfering with God’s will’ or referred to traditional healers for help before going to hospital.


In ancient times, cleft lip and palate was presumed to be a curse by God in India. Although many areas of the country are now better educated about the condition, some communities – such as the remote hilly areas of the Garhwal region – still believe that this is the case. Children born with clefts in these communities are called “Khandu” (incomplete) and are often shunned by society.

In other parts of the country, communities are more accepting of the condition. However, children are often brought into hospitals for surgery much later than the ideal surgical time. This is mostly due to poverty, illiteracy and improper health facilities.

For more information about how Smile Train is supporting children born with clefts globally, please visit: smiletrain.org.uk

- Advertisement -
- Advertisement -

Stay Connected


Must Read

New report: How to tackle climate change through community action

THE National Lottery Community Fund has today published a new report sharing learning and insights from recent environmental projects made possible thanks to National...

Famous faces show their support for first-ever virtual RBC Race for the Kids

HARRY Potter star, Jason Isaacs, Downton Abbey actor, Matt Barber, Great British Bake Off favourite, Candice Brown and actor, Michelle Collins will be pounding...
- Advertisement -

Employment News

Samaritans appoints Keith Leslie as new Chair of Trustees

THE leading suicide prevention charity in the UK and ROI has appointed Keith Leslie as the new Chair of Trustees at Samaritans. Keith joins Samaritans...

The Big Issue makes two new appointments

THE Big Issue is expanding its reporting team with the appointment of a new Digital Editor and the newly created role of Digital Producer. Alastair...

New asbestos-related cancer nurse specialist appointed for South Tyneside and Sunderland

JOANNE Anderson has been appointed as a new Mesothelioma UK Clinical Nurse Specialist at South Tyneside and Sunderland NHS Foundation Trust. Joanne will be...

Related News

Disability Action Yorkshire learners benefit from Freemasons Coronavirus grant

DISABLED students in Harrogate are being aided in their lessons thanks to a local Masonic Lodge. Harlow Lodge secured a grant of £1,500 to enable...

Awards project receives grant boost

A share of £600,000 has been awarded to three West Midlands organisations to create inclusive arts and cultural projects linked to the Commonwealth Games,...

Auntie’s fundraising for miracle baby Kayleigh

THE auntie of a young baby who was operated on during her birth has fundraised for a Manchester hospital which helped save her niece’s...

Revolutionary piece of equipment will support surgeons operating during pandemic

LEEDS Cares funds revolutionary piece of equipment to help support surgeons operating during the pandemic. Leeds Cares has announced that Leeds Teaching Hospitals is now...

Samaritans appoints Keith Leslie as new Chair of Trustees

THE leading suicide prevention charity in the UK and ROI has appointed Keith Leslie as the new Chair of Trustees at Samaritans. Keith joins Samaritans...
- Advertisement -