Tuesday, 23 April 2024
Tuesday, 23 April 2024

Mother’s Pedal Paddle Peak mission for Daughter with muscular dystrophy

Mother’s Pedal Paddle Peak mission for Daughter with muscular dystrophy
Left to right: Charlotte Chubb, Hannah Hanraty, Bex Wingrave and Lisa Baker.

MOTHER-of-two, Charlotte Chubb, 40, from Lewes, East Sussex, will be one of 146 people, from across the country, taking on a charity fundraising challenge on Saturday 1 July. 

Charlotte will be joined by Hannah Hanraty, from Eastbourne, Bex Wingrave, from Burgess Hill and Lisa Baker, from Peachaven. The team of four will be tackling the challenge in Penrith, the Lake District, all in support of Muscular Dystrophy UK (MDUK). They are hoping to raise a fantastic £5,000 for the charity, which helps to fund research into treatments for rare, life-limiting muscle-wasting conditions and supports the 110,000 children and adults across the UK affected by these conditions.

The fundraisers make up team ‘Charlie’s Angels’ will take part in a 30-mile cycle, which is split across two stages, a two-mile canoe on the stunning Ullswater Lake, followed by climbing Helvellyn Mountain, before they get back on their bikes to complete the second stage of the cycling. They’re determined to complete the challenge for Charlotte’s five-year-old daughter, Josie, who was diagnosed with Ullrich congenital muscular dystrophy in 2021, aged four.

Mother’s Pedal Paddle Peak mission for Daughter with muscular dystrophy
Five-year-old Josie Chubb living with Ullrich congenital muscular dystrophy.

Charlotte said:

“Josie’s condition means she cannot run, jump, climb stairs or transition from seated to standing. The condition reaches further than just the legs, it also means Josie has weak upper body strength affecting her arms, torso and neck.  Everyday tasks are significantly more difficult if not impossible for Josie without adult support.”

Avid fundraiser Charlotte, along with her husband James, 40, have raised an impressive £31K since Josie was diagnosed through their MDUK’s family fund – Chubb’s Crusade. The charity awarded the pair MDUK’s Fundraiser of the Year, as part of their prestigious annual President’s Awards and was presented by Tottenham Hotspur player, Son Heung-min, along with the MDUK’s CEO Catherine Woodhead in a surprise call.

Charlotte and James receiving their MDUK President’s Awards 2022 – Fundraiser of the Year:

Charlotte said:

“When your child receives a diagnosis for which there is no cure or treatment, you feel super helpless as parents. Fundraising felt like something we could do that’s proactive. MDUK was there for us after the diagnosis and has helped us build an invaluable support system. So, we thought we’d go out and raise as much awareness as possible.”

The team of four, including two of Josie’s aunties, will join 45 other teams on the day to help raise vital funds for the charity. The event started in 2016 and has helped to collectively raise £392,000 for the charity and hopes to raise £100,000 from this year’s event.

To support Charlotte and friends you can head to their online fundraising page: justgiving.com/fundraising/charliesangels-ppp.

Charlotte added:

“Since Josie’s diagnosis, we‘ve made it a priority to support the needs of our daughter but to also ensure that we contribute to raising awareness and funds for the whole MDUK cause. We’re looking forward to completing Pedal Paddle Peak and raising funds but also raising awareness for all those with a disability and how society needs to be more inclusive.”

Kiera Santry, Challenge Events Manager at Muscular Dystrophy UK said:

“Pedal, Paddle, Peak is a huge event in the calendar, our triple challenge of the year and we are delighted to be returning for the eighth year. The scenic route around the beautiful Ullswater Lake, along with the atmosphere on the day makes it a truly special occasion – and it’s an exceptional achievement and experience for all who cross the finish line.

“We are grateful to Charlotte and her friends for their ongoing support to raise funds and awareness on behalf of Muscular Dystrophy UK. This will help us continue supporting and improving the lives of thousands of families living with rare muscle-wasting conditions.

“We wish Charlotte, Hannah, Bex and Lisa along with all our other participants the very best of luck with this challenge – and we’ll be supporting them every step of the way.”

Interested in taking on a challenge for Muscular Dystrophy UK why not sign up today? For more information or to help support our work, visit musculardystrophyuk.org or call our free helpline on 0800 652 6352 (open Mon-Thurs 10am-2pm).

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