THE Nassy family are celebrating hitting their £500,000 target raised to fly seven-year-old Denny to America. However, the NHS have recently decided to run a trial of the treatment Denny needs in the UK in July for just five people. Denny is hoping to be selected.
Denny Nassy from Hastings was diagnosed with acute lymphoblastic leukaemia in January 2016. He was treated with chemotherapy and went into remission but relapsed in 2018 – the same week as his younger sister Marley was diagnosed with leukaemia too. Both have undergone chemotherapy and Denny has since had a bone marrow transplant – but the leukaemia has returned. Marley is currently in remission.
There are no curative treatments currently available for the condition on the NHS so Denny’s only chance is either the join the new trial or to go for CAR-T therapy in the USA – a course of action recommended by his care team.
If Denny isn’t selected for the trial, or it is unsuccessful, his family is hoping he can travel to the USA for the procedure. Or while Marley is currently in remission, her future remains uncertain so the money could be held in reserve for her. If the money isn’t needed for treatment or ongoing healthcare needs for either child, charity Tree of Hope will use any remaining funds to continue their work helping seriously ill and disabled children once Denny and Marley have reached the age of 25.
Dad Dave Nassy, 62 and Mum Marie-Anne Cornelius, 32, from Hastings have been desperately fundraising along with many family members since September, including his aunt Michele Laurens, 40, also from Hastings.
Denny’s Aunt Michel Laurens, 40, said:
“Denny’s a sweet, thoughtful boy who enjoys spending time with his siblings and worries about his little sister Marley. He’s been sick most of his short life – we just want to get him the treatment he needs so that he can enjoy the kind of life a little boy like him should have.”
“We’re over the moon to have raised the money – the local community has really got behind us and we are really grateful for that. And now the treatment is coming to the UK so it feels like he has two options.”
“He’s been through so much and he is very tired. We hope this is the solution we’ve all been looking for.”
Tree of Hope CEO Gill Gibb said:
“We’re delighted the Nassy family have managed to raise so much money so quickly – they have done an amazing job and have had incredible support from the community. We wish Denny all the best with his treatment, whether that takes place in the UK or abroad.”
The Nassy family are being supported by Tonbridge-based Tree of Hope, a charity which helps families fundraise for children like Denny with healthcare needs not funded by the NHS. To donate to Tree of Hope, visit https://www.treeofhope.org.uk/donations
For more information, images or to arrange interviews please contact Catherine Cooper on 00 33 5 61 69 57 89, 00 33 6 09 03 55 88 or firstname.lastname@example.org