DEBRA UK, the national charity, and patient support group for people living with Epidermolysis Bullosa (EB), an extremely rare and largely unknown skin condition, has refreshed its visual brand to raise awareness, of the charity, the condition, and to encourage support.
EB is a devastating skin condition which causes the skin to blister and tear at the slightest touch resulting in excruciating pain. With skin as fragile as a butterfly’s wings, it is often referred to as ‘butterfly skin’. According to a March-22 YouGov study, the term ‘butterfly skin’ has greater awareness amongst adults in Great Britain than Epidermolysis Bullosa, and so in response to this DEBRA UK has repositioned itself as ‘The Butterfly Skin Charity’ adopting this as its new tagline to capitalise on the increased awareness of the term.
The DEBRA UK visual brand has also evolved with a new butterfly motif which hints at the DEBRA effect, where lots of small actions add up to make a difference to people living with EB, new, more modern colours, and a clear call to action through the new brand signature ‘Help stop the pain of EB’.
The evolved visual brand, which was developed by specialist brand marketing agency, SaturnFive, and in consultation with DEBRA’s members, trustees, staff, volunteers, supporters, and EB medical professionals, will be rolled out as part of the charity’s new £5m fundraising appeal ‘A Life Free of Pain’ which launches during EB Awareness Week in October and across its network of 105 charity shops in 2023.
Tony Byrne, DEBRA UK CEO said:
“I have seen first-hand the extreme pain this devastating condition causes and the daily challenges it creates Our Vision is ‘A world where no one suffers from Epidermolysis Bullosa (EB). Our Mission is to provide lifelong care, while seeking cures, for all those affected/impacted by EB.
“We will accelerate our drug repurposing programme, fund life-changing treatments and continue to provide our EB community support and healthcare. We need more support and awareness is key to that, so we’re really pleased to have an evolved brand which clearly communicates who we are and our purpose, which is to stop the pain of EB.”