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Wednesday, 21 October 2020


Children’s cancer charity Neuroblastoma UK welcomes new Trustee

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A mother whose two-year-old daughter passed away after being diagnosed with a rare cancer has been appointed as a Trustee at Neuroblastoma UK, a national children’s cancer charity.

Carolyn Jackson from Tunbridge Wells in Kent said:

“I am proud and honoured to join Neuroblastoma UK on their Board of Trustees. Neuroblastoma UK is an amazing charity which I have supported since our daughter Florence was diagnosed with neuroblastoma in 2015. When she passed away in 2017 aged just two and a half years old, I became overwhelmingly passionate about finding a cure for this horrible disease. To be involved in a charity whose primary focus is this, together with finding kinder treatments, is a privilege.”

Florence Jackson

Carolyn and her family raised over £300,000 to help fund Florence’s treatment overseas, but sadly she passed away too soon. The money raised was donated to charities including Neuroblastoma UK to help fund much-needed research into neuroblastoma and support the hospital where Florence spent her last few months. Carolyn has since raised nearly £3,000 by taking part in running events, with friends and family continuing to support the charity with birthday and in-memory donations

Carolyn added:

Florence Jackson

“Florence has changed me – what she endured was horrific. She continues to inspire how I approach my life and I am honoured to accept this role for her and all the other beautiful children affected by neuroblastoma. I am very much looking forward to working with my fellow Trustees to help Neuroblastoma UK continue funding vital research and giving hope to so many families now and in the future.”

Tony Heddon, Chair of the Board of Trustees at Neuroblastoma UK said:

“The Trustees are delighted to welcome Carolyn to our Board. Her personal experience of neuroblastoma will provide valuable insights into the effect this disease has on children, parents and their families. Her passion and commitment will ensure they remain at the forefront of our minds as we develop future activity at a particularly challenging time for our charity.

“We’re predicting a huge loss of over 30% in voluntary donations this year due to the coronavirus outbreak, which could delay our funding of neuroblastoma research for next year and beyond. Carolyn and our Board play a critical role in ensuring we deliver on our mission to find a cure and fund vital research to develop more effective treatments for children with neuroblastoma.”

To support Neuroblastoma UK and donate online, please visit: https://www.neuroblastoma.org.uk/urgent-appeal

To read Florence’s story, visit: https://www.neuroblastoma.org.uk/personal-stories/florence

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