Wednesday, 17 August 2022
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Wednesday, 17 August 2022

Children Today: How a gift in a Will changed Filip’s life

GIFTS in Wills help us change the lives of children and young adults living with a disability and life-limiting conditions across the UK. Reducing social isolation, providing more freedom and, crucially, greater opportunities to live the lives they choose. 

Last year alone gifts in Wills meant we were able to help fund life-changing equipment for 15 more children. Children Today received a recent legacy of £3,000, which helped us fund vital equipment, including a much-needed adapted trike for Filip.

Filip who has Dravet Syndrome – a rare, severe and lifelong type of epilepsy – is unable to ride a regular bike due to his condition, which causes mobility and balance issues.

Filip’s family were desperate for him to have an adapted trike, to help him get regular exercise safely, but at a cost of over £1,600 they reached out to Children Today for support. Filip’s mum, Gabriela, has described how much joy the trike has brought to Filip.

Gabriela said:

“I can’t even put into words how happy Filip is since getting this trike. He’s like a different child.

“We knew that the trike would be great for his physical development, but seeing how much joy and happiness it has brought him as well is amazing.

“The pandemic and lockdowns really affected Filip’s mental health and confidence. But since he’s had the trike he’s so much happier and becoming more independent. He’s the smiling, chatty Filip we know and love again.”

The medication that Filip has to take for his epilepsy makes him prone to weight gain and Filip also has a lot of problems with his legs and hips, so it’s really important that he is able to exercise regularly.

Gabriela added:

“The trike provides a fun way to get exercise and we’ve already seen a huge improvement in his strength and stamina. When he first got the trike he would struggle to pedal uphill or ride on grass, but now he’s doing much better and he can go so fast!”

The adapted trike has not only helped with Filip’s physical development but his behaviour has improved too. 

Gabriela continued:

“Filip can be a bit cheeky and he has some developmental delays due to his condition, but I’ve really noticed how much better he is at responding to instructions since getting the trike. He’s also much more willing to go out, he’s always asking to go out on his trike even when the weather is bad.

“The trike has really helped him bond with his older brothers too. He loves chasing them on his trike, making police car noises! It’s been great being able to get out more together as a family.”

Emma Prescott, Charity Director at Children Today, added:

“It’s wonderful to think that someone’s lasting legacy has had such a wonderful impact on not just Filip, but his whole family, and other children too. Not only has this trike helped to give Filip the physical boost he needed, but it’s also given him the feeling of freedom and fun every child experiences riding a bike, and you can’t put a price on that!

For more information about Children Today, please visit: www.childrentoday.org.uk or contact our team on: info@childrentoday.org.uk or call 01244 335622. 

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