The ED Society

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Why the hot weather can be fatal for those affected by rare condition Ectodermal Dysplasia

THE Ectodermal Dysplasias are genetic disorders affecting the development or function of the teeth, hair, nails and sweat glands. More than 180 different types of Ectodermal Dysplasia (ED) have been identified. The ED Society is a charity dedicated to improving...

The ED Society: Breakthrough in research for Ectodermal Dysplasia

RESEARCH into the Ectodermal Dysplasias has been carried out since the 1800s when Darwin first documented his findings. However, very little was known about Ectodermal Dysplasia when The Society was formed in 1996. This same year an international team of researchers,...

The ED Society: Small UK charity celebrating 25th anniversary

Diana Perry CEO writes WOW, what a turbulent 18 months we have all had. Like many, this past year has been our biggest struggle yet.   We were really excited last year planning our Anniversary Dinner Dance, celebrating 21 years of being a...
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