ALEX’S Wish a Leicestershire-based, parent-led charity with a mission to cure Duchenne Muscular Dystrophy, a life-limiting childhood muscle-wasting disease affecting 1 in 3,500 boys, has appointed a new Chair of their Trustee Board and a new Trustee.
Emma Hallam, Founder and CEO of Alex’s Wish, commented on the appointments, she said:
“We’re fortunate at Alex’s Wish to have an exceptional and incredibly proactive Board of Trustees which has been successfully chaired by Stephen Dean for the past two years. Stephen has recently completed his 2-year term and felt it best for the charity for someone else to take over this role to keep progress going, continue diversity and ensure the charity remains relevant.
“Our heartfelt thanks go to Stephen for his invaluable help and support over the past two years. He’s helped us all hugely in taking the Charity to the next level and he will be sorely missed.”
Having discussed this with our Trustees, Alexandra Slack (The House of Lifestyle Management) was put forward, who is a relatively new trustee of Alex’s Wish, and has extensive charitable experience and understands our mission and charitable aims inside out would be a great candidate for the role. After careful consideration, she was delighted to accept and will be starting her role with us this month.
“I felt honoured to be approached for the position of chair of Trustees because I believe it is one of most incredible charities in the East Midlands. I am passionate about working within the local community to raise awareness and to help find a cure for this devastating disease. I feel honoured to be working alongside a great team of trustees and I know together we call all make a difference.”
“As a Board, we’re also constantly reviewing our skill sets and what the charity needs to enable us to achieve our mission. One of our Trustees, Glynis Wright MBE, made a fabulous connection via the University of Leicester with Tom Carter who’s studying there and thought he may be a good fit. Tom is studying journalism at the university and has a particular interest in media including social media. Over the summer Tom joined us as a Trustee and we are very much looking forward to working with him and gaining his insights.”
Commenting on the appointment Tom said:
“I’m incredibly honoured to be joining the fantastic team here at Alex’s Wish and take part in the already great work being done. It is such an exciting time to be involved with the charity and I hope that what I can bring to the table as a student of journalism combined with some fresh ideas will help us on our journey to find a cure for Duchenne. I can’t wait to get started and to do my best for this amazing cause.”
“We’re always seeking new volunteers to give their time as a Trustee to build on the skills and experience of our existing Trustee Board and bring along fresh ideas to help further our important mission. We meet monthly for one hour and our Trustees are encouraged to support us wherever they are able. It is incredibly rewarding work and can lead to new skills being developed as well as new friendships. If this is of interest to anyone reading this piece then do, please, get in touch with me.”
To find out more about Alex’s Wish, please visit: www.alexswish.co.uk.